Giornata Mondiale dell'Emofilia

Manifestazioni ed eventi

Anche quest’anno a Bosentino si ritrova l’associazione Emofiliaci Trentini in occasione della Giornata Mondiale dell’Emofilia domenica 19 aprile 2015. Quest’anno la festa si allarga a tante altre malattie rare, per informare ma anche per passare una bella giornata assieme.

L'emofilia è una malattia rara più nel sentire comune che nella realtà clinica: è rara soprattutto perchè nessuno ne parla, per timore di emarginazione e discriminazioni fortunatamente molto spesso infondati.
Il programma della giornata vuole creare un momento di festa per poter parlare di questo tema non facile.
Si inizia alle ore 11:00 con la presentazione della giornata e il saluto delle Autorità.
Alle ore 12:00 si pranzerà tutti insieme con la maccheronata preparata dal Gruppo ALpini e Pro Loco di Bosentino.
Dalle ore 14:00 il pomeriggio sarà animato da una serie di esibizioni, concerti e giochi aperti a grandi e piccoli.
Alle ore 17:00 dopo il Nutella Party si concluderà la giornata.

organizzazione: Associazione Emofiliaci Trentini

quando

Domenica, 19 Aprile 2015

dove

Parco Bosentino

Come arrivare

contatti

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