RARO

Un’esperienza nel mondo delle malattie rare

Incontri e convegni

A quasi un anno dalla scomparsa di Dennis ci ritroviamo più forti che mai al nostro terzo incontro RARO.
Una tavola rotonda per discutere sulle malattie rare attraverso l’esperienza di Dennis.

E poi una serata di buon cibo, sorprese e tanta musica per non dimenticare e sostenere la lotta alle malattie rare.

 

Alla tavola rotonda parteciperanno:

Annunziata Di Palma - Coordinatrice del Centro Provinciale di Coordinamento per le Malattie Rare, Direttrice dell’UO di Pediatria dell’Ospedale di Trento

Francesco Lombardi - Presidente Associazione Italiana Famiglie VHL

Paola Maccani - Dirigente all’integrazione Sociosanitaria, Apss Trento

Annalisa Pedrolli - Responsabile S.S. Centro Provinciale Coordinamento Malattie Rare, U.O.M. di Pediatria - Ospedale di Trento

Francesco Terrasi - Medico Rsa Vila Belfonte Trento

Luca Zeni - Assessore alla salute e politiche sociali

organizzazione: Bookique Trento

quando

Sabato, 07 Maggio 2016

ore 18.30

dove

Bookique - Caffè letterario Predara dettagli

Via Torre d'Augusto, 29 Trento

come arrivare

contatti

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Timing: Jul 03 2026 05:41:02
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Timing: Jul 03 2026 05:41:02
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Timing: Jul 03 2026 05:41:02
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Missing translation for message in context: 'kernel/navigationpart' with comment: 'Navigation part'. The untranslated message is: 'contentclassmanager'
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Missing translation for message in context: 'kernel/navigationpart' with comment: 'Navigation part'. The untranslated message is: 'Amministrazione Trasparente'
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Unknown template variable 'pagedata' in namespace ''
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DEV 192.168.105.41